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  • Publication

    The ethics of biomedical research: An international perspective

    Oxford University Press
    Brody, Baruch A.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Grant Abstract

    Preparing for Genomic Editing Technologies: An Anticipatory Approach

    PROJECT NARRATIVE Human genome editing is a powerful tool for creating precise changes to the genome, the complete set of genetic material. However, human genome editing raises significant ethical,…
  • Grant Abstract

    ELSI Biennial Congress

    PROJECT NARRATIVE The goal of the biennial ELSI Congress is to provide a dedicated, regularly scheduled meeting for researchers focused on the ethical, legal and social implications of genetic and…
  • Grant Abstract

    ELSI Biennial Congress

    For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the study of the ethical, legal and social implications (ELSI) of genetic and genomic research for…
  • Grant Abstract

    ELSI Biennial Congress

    PROJECT NARRATIVE The goal of the biennial ELSI Congress is to provide a dedicated, regularly scheduled meeting for researchers focused on the ethical, legal and social implications of genetic and…
  • Grant Abstract

    Self-governance in the Human Genome Editing Era: Can Science Rise to the Challenge?

    PROJECT NARRATIVE Human genome editing technologies are evolving rapidly and with this evolution brings questions regarding governance and the ethical implications involved in applying these…
  • Grant Abstract

    Feasibility of an Innovative Method to Understand the Dynamics of Choice and Create Diversity in Genomics Research among Older African Americans

    PROJECT NARRATIVE In response to the continued underrepresentation of African Americans in aging research involving genetic material, this study seeks to test the feasibility of an innovative method…
  • Grant Abstract

    Population Impact of Raising Perceptions of Heritable Risk

    Understanding the social factors that influence the translation of genetic information to improved human health is a major objective of genomics research (Grand Challenges II-5,II-6 and III-1). One…
  • Grant Abstract

    Neurobiological Predictors of Huntington's Disease

    The proposal is a longitudinal study of potential neurobiological and neurobehavioral markers of disease onset and progression in pre-symptomatic individuals who have the CAG expansion in the HD gene…
  • Grant Abstract

    The impact of uncertainty in genome-wide testing for Autism Spectrum Disorder

    Chromosomal Microarray Analysis (CMA) is a genome-wide technology that allows for identification of genomic alterations, such as deletions and duplications, at an unprecedented resolution. However,…