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Publication
Impact of the increased adoption of prenatal cfDNA screening on non-profit patient advocacy organizations in the United States
Prenat DiagnDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Beyond our borders? Public resistance to global genomic data sharing
PLoS BiolDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Public variant databases: Liability?
Genet MedDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Community crystal gazing
Nat BiotechnolDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Participant-partners in genetic research: An exome study with families of children with unexplained medical conditions
J Particip MedDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Experiences among women with positive prenatal expanded carrier screening results
J Genet CounsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
An assessment of a shortened consent form for the storage and research use of residual newborn screening blood spots
J Empir Res Hum Res EthicsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Concerns about justification for fetal genome sequencing
Am J BioethUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
An empirical assessment of the short-term impacts of a reading of Deborah Zoe Laufer's drama Informed Consent on attitudes and intentions to participate in genetic research
AJOB Empir BioethUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Education for fathers about newborn screening and leftover dried blood spots
J Community GenetUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037