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921 - 930 of 31511 Topics
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Publication
Maintaining the legal status of people with intellectual disabilites as parents: The ADA and the CRPD
Fam Court RevUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Clarify the HIPAA right of access to individuals' research data
Nat BiotechnolUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Comparison of video, app, and standard consent processes on decision-making for biospecimen research: A randomized controlled trial
J Empir Res Hum Res EthicsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Cost-effectiveness of nusinersen and universal newborn screening for spinal muscular atrophy
J PediatrUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
The limited use of US residual newborn screening dried bloodspots for health disparity research
Genet MedUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Newborn screening knowledge and attitudes among midwives and out-of-hospital-birth parents
J Perinat Neonatal NursUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Family sense-making after a Down syndrome diagnosis
Qual Health ResUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Israel's immigration policies and the promotion of genetic testing: Empiricizing definitional criteria, bolstering state demographic security, or hastening the Messianic Era?
J Middle East AfrUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Ethical and public health implications of genetic testing for suicide risk: Family and survivor perspectives
Genet MedUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Employees with intellectual disabilities during the COVID-19 pandemic: New directions for disability anti-discrimination law?
Oklahoma Law RevUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037