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CSER Phase 2 Patient-Initiated Actions Attributable to Genomic Testing (PIA) Survey

Author(s):

Clinical Sequence Evidence-Generating Research (CSER Phase 2) Consortium

Year:

2019

The Patient-Initiated Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, asks adult patients to report whether they took any actions following the return of genetic test results, including making changes to their own or their child's health care, lifestyle, or insurance.

Research Population:

Adults

Parents

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CSER Phase 2 Patient-Initiated Actions Attributable to Genomic Testing (PIA) Survey

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