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Grant Abstract

Utility of Genomic Sequencing in Community Care Contexts

PROJECT NARRATIVE Families with children who have identified deficits in speech and/or sensory or musculoskeletal impairments without a known cause may be referred for genetic testing to find out…

Grant Abstract

Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests

PROJECT NARRATIVE The proposed K01 Award?'Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests??will enable the candidate to acquire the academic…

Grant Abstract

The Geneticization of Education: ethical, social, and policy implications of polygenic scores for educational attainment

Project Narrative This proposal seeks to investigate the ethical, social, and policy implications of a new kind of genetic information currently available to the public: polygenic scores for…

Grant Abstract

Integrating Nurse Champion Model for Group Reproductive Genetic Counseling for Sickle Cell Hemoglobinopathies into Primary Care: A Pilot Implementation Science Study

PROJECT NARRATIVE: Genetic counseling and health education are essential components of any early diagnosis program for sickle cell disease to ensure that risk results are effectively communicated by…

Grant Abstract

Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations

Prenatal screening and testing technologies using genetic methods are rapidly expanding, offering increasing amounts of genetic information about the fetus. However, research shows that women from…

Grant Abstract

Ethical and Social Implications of In Vitro Gametogenesis

Project Narrative "Ethical and Social Implications of In Vitro Gametogenesis" In vitro gametogenesis (IVG) is an emerging technology that involves making an egg or a sperm cell outside of…

Grant Abstract

Assessing Minor Children's Readiness to Receive Genetic Information

This project is designed to improve our understanding of when to best communicate parental genetic risk information to minor children by assessing the minor's readiness to receive such…

Grant Abstract

Self-governance in the Human Genome Editing Era: Can Science Rise to the Challenge?

PROJECT NARRATIVE Human genome editing technologies are evolving rapidly and with this evolution brings questions regarding governance and the ethical implications involved in applying these…

Grant Abstract

Ethical, Legal, Social, and Policy Implications of Workplace Genomic Testing

PROJECT NARRATIVE A number of US employers are offering their employees confidential workplace genomic testing (wGT), a service that could inform employees of their genetic risk for certain treatable…

Grant Abstract

Consumer Protections for Genomics and Precision Health

PROJECT NARRATIVE Consumer protections are of rising importance to the sustainability of personal genomics and mobile health industries and realization of precision health, yet the extent of consumer…