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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

1081 - 1090 of 1102 Additional Resources

  • This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

    • Jennifer K. Wagner
    • NHGRI
    • GINA
    • HIPAA
    • genetic privacy

  • This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

    • Jennifer K. Wagner
    • NHGRI
    • GINA
    • HIPAA
    • genetic privacy

  • This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

    • Jennifer K. Wagner
    • NHGRI
    • GINA
    • HIPAA
    • genetic privacy

  • The National Academies of Sciences, Engineering, and Medicine produced this report in 2023 to describe best practices on the use of race, ethnicity, genetic ancestry, and other population descriptors in genetics and genomics research.

    • NASEM
    • population descriptors
    • genetic ancestry
    • genomics research

  • The National Academies of Sciences, Engineering, and Medicine produced this audio file summarizing recommendations for the use of population descriptors in human genetics and genomics research.

    • NASEM
    • population descriptors
    • genetic ancestry
    • genomics research

  • This educational resource offers guidance and examples of how to incorporate gender-inclusive language into genetic counseling practice.

    • gender inclusivity
    • gender neutral language
    • genetic counseling

  • The Harvard University Digital Accessibility Services website provides an overview of how to make multimedia content accessible through captioning, transcripts, and audio descriptions.

    • accessibility

  • This page written by the Harvard University Digital Accessibility Services describes how to compose an accessible email.

    • accessibility

  • Northwestern University provides a list of accessibility resources, including a two page checklist and explanation of how to make an accessible course in Canvas.

    • accessibility

  • This page written by the Digital Accessibility Program at UC Berkeley describes components of an accessible video, including accurate captions, sufficient color contrast, and audio descriptions of visual aids.

    • accessibility