Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

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This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

  • Jennifer K. Wagner
  • NHGRI
  • GINA
  • HIPAA
  • genetic privacy

This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

  • Jennifer K. Wagner
  • NHGRI
  • GINA
  • HIPAA
  • genetic privacy

This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

  • Jennifer K. Wagner
  • NHGRI
  • GINA
  • HIPAA
  • genetic privacy

This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

  • Jennifer K. Wagner
  • NHGRI
  • GINA
  • HIPAA
  • genetic privacy

This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

  • Jennifer K. Wagner
  • NHGRI
  • GINA
  • HIPAA
  • genetic privacy

The National Academies of Sciences, Engineering, and Medicine produced this report in 2023 to describe best practices on the use of race, ethnicity, genetic ancestry, and other population descriptors in genetics and genomics research.

  • NASEM
  • population descriptors
  • genetic ancestry
  • genomics research

The National Academies of Sciences, Engineering, and Medicine produced this audio file summarizing recommendations for the use of population descriptors in human genetics and genomics research.

  • NASEM
  • population descriptors
  • genetic ancestry
  • genomics research