Additional Resources

The Robert Cook-Deegan Human Genome Archive is founded on the bibliography of The Gene Wars: Science, Politics, and the Human Genome, published in 1994 by W. W. Norton and Co., Inc. The full text of the book and select items from the bibliography have been digitized to support research on the history of genomics. Funding to digitize this collection was provided as part of the Duke University Center for Public Genomics. Grant number(s): P50HG003391

This core developed by Jennifer B McCormick examines fundamental concepts in scholarship on the ethical, legal/policy, social implications of genetic and genomic science. These include how the field of genetics has evolved into the current era of translational genomics and personalized medicine, genetic discrimination and stigmatization, existing legal/regulatory frameworks, race and ethnicity, return of research results, return of incidental findings from genomic sequencing, individual’s right to know/right not to know, and data ownership and sharing.

This core course offered by the Institute for Public Health Genetics provides an introduction to the ethical, legal, social, and policy issues arising as genetic or genomic knowledge and technologies are developed and made available to individuals and populations. Students will learn to identify and anticipate potential ethical, legal, social, financial, and policy considerations that arise with emerging technologies when applied in clinical, research, consumer, and public health contexts. In this course, we will examine public health genetics issues from diverse disciplinary perspectives

This course developed by Karen Schindler explores the ethical, lega, and social implications of emerging genetic technologies.

This course developed by William Allen and Marta Wayne covers topics pertaining to ethics, science policy, and translation in genetics research, as well as responsible conduct of research.

This course covers legal issues related to genetics and genomics research, practice, and policy. The course objectives include addressing the response of the law and the legal system to advances in genomic and genetic information and technologies and anticipating and positing legal responses for the future.

This course developed by Stephanie Brown covers ethical and social issues related to research and clinical practice in medical genetics and genomics.

This course explores ethical and social issues as they relate to genetics and genomics in both clinical and public health contexts.

The Classic Readings in Genetics & Ethics seminar series was co-sponsored by the Stanford Center for Integration of Research on Genetics and Ethics (CIRGE) and the Stanford Center for Biomedical Ethics. The seminar focused on discussing a different classic article, topic, or case related to genetics and ethics, and its relevance to a more recent article or case.

This educational resource offers guidance and examples of how to incorporate gender-inclusive language into genetic counseling practice.