Additional Resources

This course covers legal issues related to genetics and genomics research, practice, and policy. The course objectives include addressing the response of the law and the legal system to advances in genomic and genetic information and technologies and anticipating and positing legal responses for the future.

This course developed by Stephanie Brown covers ethical and social issues related to research and clinical practice in medical genetics and genomics.

This course explores ethical and social issues as they relate to genetics and genomics in both clinical and public health contexts.

The Classic Readings in Genetics & Ethics seminar series was co-sponsored by the Stanford Center for Integration of Research on Genetics and Ethics (CIRGE) and the Stanford Center for Biomedical Ethics. The seminar focused on discussing a different classic article, topic, or case related to genetics and ethics, and its relevance to a more recent article or case.

Author: Sara Huston, MS – Research Assistant Professor, Lurie Children's

This NIH page provides information and resources for researchers with disabilities in biomedical research supported by extramural awards. Topics include funding opportunities, relevant grant policies and requirements, peer review, notifying NIH of potential harassment or discrimination, how to improve accessibility, and more.

Gail Henderson was Principal Investigator of the Center for Genomics and Society at University of North Carolina-Chapel Hill. This center conducted an integrated set of research, policy, and education activities focused on new or heightened ELSI issues resulting from large-scale gene discovery and disclosure projects, and developed policy-relevant recommendations to address translation to practice. The center operated from 2007 - 2019.

Wylie Burke was Principal Investigator of the University of Washington Center for Genomics and Health Care Equality. This center's goal was to develop methods to inform all segments of society about technological advances, and to improve the mechanisms for obtaining input from diverse populations to help to identify and assess policy options for addressing these challenges. The center operated from 2004 - 2017.

Mildred Cho was Principal Investigator of the Stanford University School of Medicine Center for Integration of Research on Genetics and Ethics (CIRGE). The goals of this center were to 1) to enhance the incorporation of ethical and societal considerations into the practice of genomic research on behavior through identifying the issues raised by such research; 2) to conduct scholarly studies that inform the ethical practice of research; and 3) to develop mechanisms that enhance the incorporation of ELSI considerations into research. The center operated from 2004 - 2016.

Patricia Marshall, Richard Sharp, & Eric Juengst were Principal Investigators of the Case Western Reserve University Center for Genetic Research Ethics and Law (CGREAL). This center studied the ethical issues in the design and conduct of human genetic research, including issues regarding the protection of human subjects in research. The center operated from 2004 - 2016.