Additional Resources

Trailer for the documentary Rarefied. The documentary, directed & produced by Wil Weldon, follows the journey of nine families struggling with undiagnosed genetic conditions.

Historical materials relating to Association of Molecular Pathology v. Myriad Genetics (“the Myriad Case”) on gene patents. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social Implications) Research, 2004-2015 (P50 HG 003391).

Historical materials related to the Human Genome Project and genomics. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social Implications) Research, 2004-2015 (P50 HG 003391).

Historical materials relating to seminal genomics technologies. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social Implications) Research, 2004-2015 (P50 HG 003391).

Historical materials relating to genomics IP cases (other than AMP v. Myriad). These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social Implications) Research, 2004-2015 (P50 HG 003391).

Historical materials relating to the Bermuda Principles for genomic data sharing. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social Implications) Research, 2004-2015 (P50 HG 003391).

This ASRM Ethics Committee opinion published in 2018 outlines key points to consider in the development of identification and disclosure of sex policies at clinics that perform PGT with a primary medical goal.

This ASRM Ethics Committee Report published in 2019 highlights the need for shared information in the consent process, addresses preferences expressed by donors over who should receive their gametes and embryos, and considers the responsibilities that donors have to their own families, to recipient families, and to children conceived with their gametes and embryos.

This ASRM Ethics Committee opinion published in 2018 offers key points to consider in the determination of the ethical permissibility of PGT-M for adult-onset conditions.

The Center for Public Health and Community Genomics promotes the integration of genomic discoveries into public health practice with emphasis on the ethical, legal, and social issues associated with the application of genomics and public health and the importance of engaging the community at large in the development and implementation of public health genetics programs.