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1071 - 1080 of 31511 Topics

  • Publication

    Investigating genetic counselors' communication with Lynch syndrome patients about cascade testing: Barriers, facilitators, and strategies

    J Genet Couns
    Zhong, Lingzi, Rodriguez, Yanete, Espinel, Whitney, Ozanne, Elissa M, Kaphingst, Kimberly A.
    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

  • Video

    Racial Politics and Health Equity in Genome-Editing Therapeutics

    ELSIcon2024 • Paper • June 12, 2024  Authors: Co-author: Santiago J. Molina, PhD (he/they) - Northwestern University Speaker: Melissa Creary, PhD, MPH This paper examines the…
    • ELSIcon2024
    • 6th ELSI Congress
    • equity and justice in genetics
    • Gene therapies and gene editing
    • Use of race, ethnicity, and ancestry categories

  • Video

    Experiential ethics training for genomic researchers

    ELSIcon2024 • Panel • June 12, 2024  Authors: Corresponding Author: Quinn Waeiss, PhD (they/them/theirs) - Stanford University Panelist: Ariadne Nichol, BA - Stanford Center for…
    • ELSIcon2024
    • 6th ELSI Congress
    • AI and machine learning
    • equity and justice in genetics
    • Methodology and study design

  • Video

    ELSIcon2024: Experiential ethics training for genomic researchers

    ELSIcon2024 • Panel • June 12, 2024  Authors: Corresponding Author: Quinn Waeiss, PhD (they/them/theirs) - Stanford University Panelist: Ariadne Nichol, BA - Stanford Center for…
    • ELSIcon2024
    • 6th ELSI Congress
    • AI and machine learning
    • equity and justice in genetics
    • Methodology and study design

  • Video

    ELSIcon2024: Racial Politics and Health Equity in Genome-Editing Therapeutics

    ELSIcon2024 • Paper • June 12, 2024  Authors: Co-author: Santiago J. Molina, PhD (he/they) - Northwestern University Speaker: Melissa Creary, PhD, MPH This paper examines the…
    • ELSIcon2024
    • 6th ELSI Congress
    • equity and justice in genetics
    • Gene therapies and gene editing
    • Use of race, ethnicity, and ancestry categories

  • Additional Resource

    BRCA Gene Patenting Case

    Historical materials relating to Association of Molecular Pathology v. Myriad Genetics (“the Myriad Case”) on gene patents. These materials were created under the NHGRI-funded Duke Center of…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    History of Genomics

    Historical materials related to the Human Genome Project and genomics. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social Implications)…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    Landmark Genomics Technologies

    Historical materials relating to seminal genomics technologies. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social Implications)…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    Intellectual Property Cases in Genomics

    Historical materials relating to genomics IP cases (other than AMP v. Myriad). These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    The Bermuda Principles

    Historical materials relating to the Bermuda Principles for genomic data sharing. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER