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ELSIcon2024: Prenatal genetic information as preparation: Parents and clinicians reimagining benefits for families and future children
ELSIcon2024 • Paper • June 11, 2024 Authors: Speaker: Sabina Rubeck, MPH – Case Western Reserve University Genetic testing has become ubiquitous in prenatal care, historically with…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Perinatal and public health genetic screening
- reproductive genetics
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ELSIcon2024: Digital solutions to deliver genomic medicine: Taking a closer look at what’s under the hood
ELSIcon2024 • Panel • June 11, 2024 Authors: Corresponding Author: Catharine Wang, PhD, MSc (she/her/hers) – Boston University Panelist: Deborah Cragun, PhD, MS – University of…- ELSIcon2024
- 6th ELSI Congress
- Genetic Counseling
- Methodology and study design
- Return of results and incidental findings
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ELSIcon2024: Artificial intelligence for precision medicine: How close to ‘personalized’ can we really get?
ELSIcon2024 • Panel • June 11, 2024 Authors: Corresponding Author: Carole Federico, MSc, PhD (she/her/hers) – Stanford University Panelist: Kristin Kostick-Quenet – Baylor College…- ELSIcon2024
- 6th ELSI Congress
- AI and machine learning
- precision medicine
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ELSIcon2024: Addressing inequity in genomics: Normative and pragmatic considerations in using distributional cost-effectiveness analysis to guide decision making
ELSIcon2024 • Panel • June 11, 2024 Authors: Corresponding Author: Hadley Smith, PhD, MPSA – Harvard University Panelist: Jeroen Jansen, PhD (he/him/his) – University of California…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Methodology and study design
- Public Health
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ELSIcon2024: Exploring Ethical Dialogues in genomics research: A Qualitative Analysis of the Drama of DNA Method in South Africa.
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Lebogang Montewa, MPH (she/her/hers) – University of Cape Town (South Africa) This study investigated the effectiveness of two…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- Education and public understanding of genetic science
- Return of results and incidental findings
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ELSIcon2024: Analyzing Gamete Donation Screening Guidelines and Their Impact on Disability
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Hannah V. Carpenter, LLB, MA (she/her/hers) – The University of Texas Medical Branch The medical model of disability which…- ELSIcon2024
- 6th ELSI Congress
- disability
- Law, regulation, and governance
- reproductive genetics
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ELSIcon2024: Incorporating Equity Considerations in Health Technology Assessment and Funding of Genome Medicine Technologies in Ontario, Canada
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada) Genome medicine (GM)…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- precision medicine
- Public Health
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Video
ELSIcon2024: Behind the screens: A case study of misconceptions reflected in social media on the role of health-related consumer genomics services in IGG
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Nathan Reed – Northwestern University When novel applications of science emerge, social media is one of the first places…- ELSIcon2024
- 6th ELSI Congress
- Biobanking and genomic databases
- Genetic testing for non-medical purposes
- Law, regulation, and governance
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ELSIcon2024: Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestra
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan Genetic researchers must have access to databases…- ELSIcon2024
- 6th ELSI Congress
- Biobanking and genomic databases
- equity and justice in genetics
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Video
ELSIcon2024: Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Courtney Berrios, MSc, ScM, CGC (she/her/hers) – Children's Mercy Kansas City Social epigenomics research (SER) linking…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- equity and justice in genetics
- precision medicine