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Video
The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics
ELSIcon2024 • Panel • June 12, 2024 Authors: Corresponding Author: Meghan Halley, PhD, MPH - Stanford Center for Biomedical Ethics Panelist: Ryan Fischer - Foundation for Angelman…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- equity and justice in genetics
- Public Health
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Video
From Person-Centered to Family-Centered: Navigating Practical and Ethical Issues in Health System-Led Contact for Cascade Screening
ELSIcon2024 • Panel • June 12, 2024 Authors: Moderator: Emily Bonkowski, ScM, CGC (she/her/hers) - St. Jude Children's Research Hospital Panelist: Leila Jamal, ScM, PhD, LGC (she/her/…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Patient-provider communication
- Public Health
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Video
Key stakeholders’ moral attitudes on somatic gene editing for inherited cardiomyopathy: a qualitative interview study
ELSIcon2024 • Paper • June 12, 2024 Authors: Jannieke Simons, MA (she/her/hers) - University Medical Center Utrecht (Netherlands) Introduction: This paper aims to unravel the…- ELSIcon2024
- 6th ELSI Congress
- Gene therapies and gene editing
- precision medicine
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Video
Assessing the impacts of the major human genome editing (HGE) reports on the governance landscape
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Gail E. Henderson, PhD (she/her/hers) - University of North Carolina, Chapel Hill In 2018, the scientific community was…- ELSIcon2024
- 6th ELSI Congress
- Gene therapies and gene editing
- Law, regulation, and governance
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Video
Reporting practices for sexual and gender minority demographic information in NIH-supported genomic studies
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Zo Bly, BA (they/them/theirs) - National Human Genome Research Institute, National Institutes of Health Clearly defined and…- ELSIcon2024
- 6th ELSI Congress
- Gender studies
- Methodology and study design
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Video
Re-envisioning Translational Equity in Pediatric Gene Therapy Research
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Aaron Goldenberg, PhD, MPH (he/him/his) - Case Western Reserve University School of Medicine Over the last decade, the…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Gene therapies and gene editing
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Video
The Legal Weaponization of Racialized DNA
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Jonathan Kahn, JD, PhD (he/him/him) - Northeastern University A White man in Washington State tries to use the results of his…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Law, regulation, and governance
- Use of race, ethnicity, and ancestry categories
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Video
Assumptions of value: Exploring normative aspects of newborn genomic sequencing in decision analytic models
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Madison R. Hickingbotham, MS - Harvard University Researchers worldwide are exploring population-based newborn genomic…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Methodology and study design
- Perinatal and public health genetic screening
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Video
Weighing the Benefits, Harms, and Limitations of Genetic Testing in the Workplace
ELSIcon2024 • Panel • June 12, 2024 Authors: Corresponding Author: Scott Roberts, PhD (he/him/his) - University of Michigan Moderator: Wendy Uhlmann - University of Michigan …- ELSIcon2024
- 6th ELSI Congress
- Genetic Counseling
- Genetic testing for non-medical purposes
- Industry, commercialization, and direct-to-consumer genetics
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Video
Contemporary bioethics and policy changes for children with profound disabilities: Cardiac Surgery in Children with Trisomy 18
ELSIcon2024 • Panel • June 12, 2024 Authors: Corresponding Author: Benjamin Wilfond, MD (he/him/his) - Seattle Children's Research Institute Panelist: Jennifer Castillo, JD - Trisomy…- ELSIcon2024
- 6th ELSI Congress
- disability
- equity and justice in genetics
- Patient-provider communication