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1681 - 1690 of 31511 Topics
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Publication
A vision for empirical ELSI along the R&D pipeline
AJOB Empirical BioethicsRajagopalan, Cakici, and Bloss envision a future in which empirical ELSI research is deployed early and continuously to align the goals of publicly funded science with local, public interests. -
Publication
“My blood, you know, my biology being out there…”: Consent and participant control of biological samples
Journal of Empirical Research on Human Research Ethics -
Publication
The need to consider context: A systematic review of factors involved in the consent process for genetic tests from the perspective of patients
AJOB Empirical Bioethics -
Publication
Building a vertically integrated genomic learning health system: The biobank at the Colorado Center for Personalized Medicine
American Journal of Human Genetics -
Publication
Enabling the clinical application of artificial intelligence in genomics: A perspective of the AMIA Genomics and Translational Bioinformatics Workgroup
Journal of the American Medical Informatics Association -
Publication
The regulation of health data sharing in Africa: A comparative study
Journal of Law and the BiosciencesMcKay and colleagues compare legal and regulatory frameworks of health data sharing in South Africa, Ghana, Kenya, Nigeria, and Uganda; describe gaps and inconsistencies; and suggest improvements to… -
Publication
Redefining informed consent form in cell and gene therapy trials
Perspectives in Clinical Research -
Research Tool
The Parental Personal Utility Scale (Parent PrU)
The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful). This… -
Scholar
Callie H. Burt
- Behavioral and Social Science
- Health Disparities
- Sociogenomics
- social determinants of health
- Metascience
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News
ELSI in Review • February 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2024 set explores ethical considerations for…