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In the Media
23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says
The New York Times |The class-action suit said the genetic testing company failed to notify customers whose personal information was compiled into “curated” lists that were sold on the dark web.- 23andMe
- genetic data
- Biobanking and genomic databases
- breaches of confidentiality
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Video
ELSIconversations - The Misuse of Genomic Data, Session 2
Full title: What Can Geneticists Do to Address the Misuse of Genomic Data? Purdue University and CERA Collaboration Recent, but reemergent misuses of genetic data and research remain a critical…- Genomic Information
- genomic data
- genomic data privacy
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Video
ELSIconversations - The Misuse of Genomic Data, Session 1
Full title: What Can Geneticists Do to Prevent the Misuse of Genomic Data? Purdue University and CERA Collaboration Recent, but reemergent misuses of genetic data and research remain a critical…- Genomic Information
- genomic data
- genomic data privacy
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Video
Polygenic Risk Prediction in Diverse Populations and Contexts: Scientific and Ethical Considerations
This ELSI Friday Forum took place on January 12, 2024. The differential performance of polygenic risk scores (PRS) by population genetic background is a well-known scientific concern and one…- Polygenic risk scores
- Bioethics
- ethical considerations
- genetic diversity
- Screening for polygenic conditions and risk scores
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Publication
The ELSI Virtual Forum, 30 Years of the Genome: Integrating and Applying ELSI Research
The Journal of Law, Medicine & Ethics -
Collection
Patient Perspectives on Uncertainty in Genomic Medicine
All medical information is subject to uncertainty, but the practice of medical genetics is characterized by unique magnitudes and forms of uncertainty. In fact, for many patients, a “positive”…- variant of uncertain significance
- incidental finding
- patient experience
- clinical decision-making
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Additional Resource
Accessibility, Inclusion, and Action in Medical Education
This report by the Association of American Medical Colleges (AAMC) and the University of California, San Francisco, School of Medicine (UCSF) shares the day-to-day experiences of learners and…- accessibility