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Ancestry, race and ethnicity: The role and relevance of language in clinical genetics practice

Journal of Medical Genetics

Melody Grace Redman, Rachel Helen Horton, Helena Carley, Anneke Lucassen

2023

Publication

The human genome as the common heritage of humanity

Frontiers in Genetics

Faith Kabata, Donrich Thaldar

2023

Publication

Indigenous Peoples and research: Self-determination in research governance

Frontiers in Research Metrics and Analytics

Ibrahim Garba, Rogena Sterling, Rebecca Plevel, William Carson, Felina M Cordova-Marks, Jewel Cummins, Caleigh Curley, Dominique David-Chavez, Adam Fernandez, Danielle Hiraldo, Vanessa Hiratsuka, Maui Hudson, Mary Beth Jäger, Lydia L Jennings, Andrew Martinez, Joseph Yracheta, Nanibaa' A Garrison, Stephanie Russo Carroll

2023

Publication

"A very big challenge": A qualitative study to explore the early barriers and enablers to implementing a national genomic medicine service in England

Frontiers in Genetics

Bettina Friedrich, Cecilia Vindrola-Padros, Anneke Lucassen, Christine Patch, Angus J. Clarke, Monica Lakhanpaul, Celine Lewis

2023

Publication

Advancing precision medicine with gene and cell therapy in Malaysia: Ethical, legal, and social implications (ELSI)

Human Gene Therapy

Kalidasan Vasodavan, Kumitaa Theva Das

2023

Publication

Integrating participants as partners in research governance and operations: An approach from the All of Us Research Program Engagement Core

BMJ Open

Catherine Hammack-Aviran, Alecia Malin Fair, Melinda Aldrich, Jennifer Richmond, Selena McCoy Carpenter, Karriem S Watson, Elizabeth G Cohn, Consuelo Hopkins Wilkins

2023

Publication

The Parent PrU: A measure to assess personal utility of pediatric genomic results

Genetics in Medicine

Erin Turbitt, Jennefer N. Kohler, Kyle B. Brothers, Simon M. Outram, Christine Rini, Nuriye Sahin-Hodoglugil, Michael C. Leo, Barbara B. Biesecker

2023

Publication

Views of adults living with sickle cell disease on the theoretical return of secondary genomic findings

Genetics in Medicine

K. Jameson Floyd, Faeben Wossenseged, Ashley J. Buscetta, Grace-Ann Fasaye, Vence L. Bonham

2023

Publication

Ready or not, genomic screening of fetuses is already here

Genetics in Medicine

Nina B. Gold, Allan Nadel, Robert C. Green

2023

Gold, Nadel, and Green anticipate that health-literate pregnant patients are likely to seek out fetal exome sequencing and call for standardized terminology used to describe the results and an…

Publication

Selling clinical biospecimens: Guidance for researchers and private industry

Journal of Law, Medicine & Ethics

Peter H. Schwartz, Jane A. Hartsock

2023

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Ancestry, race and ethnicity: The role and relevance of language in clinical genetics practice

The human genome as the common heritage of humanity

Indigenous Peoples and research: Self-determination in research governance

"A very big challenge": A qualitative study to explore the early barriers and enablers to implementing a national genomic medicine service in England

Advancing precision medicine with gene and cell therapy in Malaysia: Ethical, legal, and social implications (ELSI)

Integrating participants as partners in research governance and operations: An approach from the All of Us Research Program Engagement Core

The Parent PrU: A measure to assess personal utility of pediatric genomic results

Views of adults living with sickle cell disease on the theoretical return of secondary genomic findings

Ready or not, genomic screening of fetuses is already here

Selling clinical biospecimens: Guidance for researchers and private industry

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