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The National Academies of Sciences, Engineering, and Medicine released a report in September 2020 that provides a blueprint and eight overarching strategies for improving healthcare for people living…

This November 2020 white paper from the All of Us Research Program, funded by the National Institutes of Health (NIH), details key insights from the 2019 ELSI Research Priorities Workshop and…

An international commission comprised of the U.S. National Academy of Medicine, U.S. National Academy of Sciences, and the Royal Society of the United Kingdom, prepared this report detailing the…

This National Academies Press publication summarizes the proceedings of the Second International Summit on Human Genome Editing, convened on November 27-29, 2018 by the U.S. National Academy of…

This National Academies of Sciences, Engineering, and Medicine report summarizes a February 2013 workshop, convened by the Committee on National Statistics in the Division of Behavioral and Social…

This 2004 report by the National Research Council concludes that security against bioterrorism is best served by continuing policies that allow scientists and the public unrestricted access to genome…

This white paper prepared by Det Norske Veritas (DNV GL), a quality assurance and risk management company, identifies 6 barriers to the uptake of dynamic consent in clinical genetics.

This NIH Guide Notice, announced on 12/2019, is in effect for applications submitted on or after 1/25/2021 and applies to new research projects deriving genomic data from human sources, such as…

This FAQ, provided by NHGRI, offers further information on the NHGRI implementation of the NIH Genomic Data Sharing Policy.