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Grant Abstract
Regulation of International Direct-to-Participant Genomic Research
PROJECT NARRATIVE Researchers are now able to use the internet to recruit and enroll widely dispersed individuals, which is valuable for a wide range of research, especially research involving rare…- American
- biobank
- Biological
- Blood specimen
- Collaborations
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Grant Abstract
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
PROJECT NARRATIVE Very little research has been done regarding non-STI-related health disparities affecting sexual and gender minorities (SGM). Even less is known about what these minorities think…- Academic Medical Centers
- Address
- Advocate
- Affect
- Attitude
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Grant Abstract
Scalable tools to effectively translate genomic discoveries into the clinic
PROJECT NARRATIVE/ RELEVANCE OF PROJECT TO RESEARCH AND PUBLIC HEALTH Widespread utilization of genomic sequencing in medicine creates an urgent need to educate providers and patients. Currently,…- Address
- Area
- Attitude
- base
- Caring
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Grant Abstract
Reporting Adult-Onset Genomic Results to Pediatric Biobank Participants and Parents
Project Narrative The potential benefits and harms of returning genomic results to children and their parents are matters of enduring controversy?especially genomic results for adult-onset conditions…- Address
- Adolescent
- Adolescent Development
- Adult
- Affect
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Grant Abstract
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
PROJECT NARRATIVE ?Precision medicine? and other advances in genetic research require access to massive amounts of genetic and related health data, but private genetic datasets are growing rapidly in…- Agreement
- Automobile Driving
- base
- career
- career development
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Grant Abstract
Engaging adolescents in decisions about return of genomic research results
PROJECT NARRATIVE: Recent recommendations to return children?s results for adult-onset conditions to parents anytime whole exome or genome sequencing is performed, as well as growing expectations to…- Address
- Adolescent
- Adult
- Age
- American
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Grant Abstract
Preparing for Genomic Editing Technologies: An Anticipatory Approach
PROJECT NARRATIVE Human genome editing is a powerful tool for creating precise changes to the genome, the complete set of genetic material. However, human genome editing raises significant ethical,…- Address
- Adopted
- base
- Basic Science
- Belief
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Grant Abstract
University of Utah Center of Excellence in ELSI research (UCEER)
PROJECT NARRATIVE The University of Utah Center for Excellence in ELSI research explores issues relevant to population testing and screening for genetic conditions in the healthcare of women and…- Address
- Advisory Committees
- Affect
- Award
- Cancer Center Planning Grant
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
PROJECT NARRATIVE The sickle cell trait (SCT) screening program of the National Collegiate Athletic Association (NCAA) is regarded as one of the largest mandated genetic screening programs in the…- Address
- Adopted
- Affect
- African American student
- Area
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Grant Abstract
ELSI.hub: National Center for ELSI Resources and Analysis
The goal of ELSI.hub, a National Center for ELSI Resources and Analysis, is to serve as a locus for resource sharing and community building to enhance the production, sharing, and use of research on…- Address
- American
- Awareness
- base
- Bioethics