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26491 - 26500 of 31565 Topics
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Grant Abstract
Exploring Choice of Law Challenges in Multi-Site Precision Medicine Research
PROJECT NARRATIVE The ability to recruit and protect research participants across multiple sites and multiple states is critical to the success of large-scale precision medicine and other biomedical…- Academic Medical Centers
- Accounting
- Address
- Agreement
- Attention
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Grant Abstract
Development of recommendations and policies for genetic variant reclassification
Project Narrative Currently, there are marked differences in variant classification among clinical laboratories, and genetic variant classification is currently in flux with improvements in the…- Address
- Adoption
- adverse outcome
- Advocate
- Affect
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
PROJECT NARRATIVE Little is known about how health care providers (HCPs) will react to, and use, genomic information in patient care. The goal of this study is to understand how genomic information…- Address
- barrier to care
- base
- Behavior
- biobank
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Grant Abstract
Center on the Ethics of Indigenous Genomic Research
Narrative American Indian and Alaska Native concerns about genomic research have been well-documented and continue to constitute significant obstacles to participation in genomic research. Our center…- Academy
- Address
- Alaska Native
- American Indians
- Area
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Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
Project Narrative This project will identify and reduce ethical and practical barriers to sharing qualitative research data. It will develop new resources to increase data sharing in an ethical…- Addiction
- Address
- Adoption
- Algorithms
- Attitude
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
PROJECT NARRATIVE The sickle cell trait (SCT) screening program of the National Collegiate Athletic Association (NCAA) is regarded as one of the largest mandated genetic screening programs in the…- Address
- Adopted
- Affect
- African American student
- Athletic
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Grant Abstract
Cost-effectiveness of Whole Genome Sequencing of Healthy Adults
PROJECT NARRATIVE The central goal of the proposed research is to determine the cost-effectiveness of integrating whole genome sequencing into the care of healthy adults. We will assess the health…- Address
- Adult
- Area
- base
- behavioral response
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Grant Abstract
Feasibility of an Innovative Method to Understand the Dynamics of Choice and Create Diversity in Genomics Research among Older African Americans
PROJECT NARRATIVE In response to the continued underrepresentation of African Americans in aging research involving genetic material, this study seeks to test the feasibility of an innovative method…- Adult
- African American
- aged
- Aging
- Alzheimer's Disease
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…- actionable mutation
- Address
- base
- behavior test
- brca gene
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Grant Abstract
Patient Preferences for Collecting and Repurposing Genetic, Consumer and Health Care Information
PROJECT NARRATIVE When Americans interact with everyday technology such as mobile applications and websites, they leave behind digital footprints that can reveal a great deal about individual health…- Address
- American
- base
- behavioral health
- Big Data