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Newborn Sequencing in Genomic Medicine and Public Health (NSIGHT)
The Newborn Sequencing in Genomic Medicine and Public Health (NSIGHT) program funded research that explored the implications, challenges and opportunities associated with the possible use of genomic…- newborn
- Newborn screening
- disorder
- DNA-based analysis
- Genomic Sequencing
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Undiagnosed Diseases Network (UDN)
The Undiagnosed Diseases Network is a multi-site research study funded by the National Institutes of Health Common Fund that aims to improve diagnosis and care of patients with undiagnosed diseases…- undiagnosed diseases
- Disease
- Diagnosis
- etiology
- Clinical Data
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Human Heredity & Health in Africa (H3Africa)
The Human Hereditary and Health in Africa (H3Africa) consortium includes 51 projects led by African scientists that use genetic, clinical, and epidemiologic methods to identify hereditary and…- Bioinformatics
- Africa
- global health
- Disease
- genomic science
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Momentum, Baylor College of Medicine
The Momentum blog is authored by the communications staff of Baylor College of Medicine with guest contributions from experts and members of the Baylor community. It covers health news, updates in…- blog
- Baylor College
- health news
- Medical Education
- news
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Data Security Toolkit, Global Alliance for Genomics and Health (GA4GH)
The Data Security Toolkit produced by the Global Alliance for Genomics and Health (GA4GH) offers ready-to-use data security guidelines for genomic data sharing.- GA4GH
- policy-framing
- genomic data
- Human Rights
- genomic data sharing
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Regulatory & Ethics Toolkit, Global Alliance for Genomics and Health (GA4GH)
The Regulatory & Ethics Toolkit produced by the Global Alliance for Genomics and Health (GA4GH) contains ready-to-use regulatory and ethics guidance for genomic and health-related data sharing…- GA4GH
- policy-framing
- genomic data
- Human Rights
- genomic data sharing
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Genomic Data Toolkit, Global Alliance for Genomics and Health (GA4GH)
The Genomic Data Toolkit produced by the Global Alliance for Genomics and Health (GA4GH) includes resources to support genomic data sharing such as machine readable consent guidance, a catalogue of…- GA4GH
- policy-framing
- genomic data
- Human Rights
- genomic data sharing
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Inter-university Consortium for Political and Social Research (ICPSR), University of Michigan
ICPSR is an international consortium of more than 750 academic institutions and research organizations that provides leadership and training in data access, curation, and methods of analysis for the…- data archive
- Social Sciences
- interntional consurtium
- research organizations
- data access
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The Qualitative Data Repository (QDR), Syracuse University
The Qualitative Data Repository (QDR) is a dedicated archive for storing and sharing digital data collected via qualitative and multi-method research in the social sciences (with an initial focus on…- qualitative data
- data repository
- QDR
- digital data
- data archive
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Public Health Genomics and Precision Health Knowledge Base (PHGKB), Centers for Disease Control and Prevention (CDC)
The CDC Public Health Genomics and Precision Health Knowledge Base (PHGKB) is an online, continuously updated, searchable database of published scientific literature, CDC resources, and other…- CDC
- PHGKB
- Genomics
- precision health
- database