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Video
ELSIcon2022 Trainee Networking Session: Working with NHGRI
ELSIcon2022 • Networking Session • June 1, 2022 Questions answered by NHGRI Program Officers Joy Boyer, Dave Kaufman, Nicole Lockhart, and René Sterling.- Live
- Networking Session
- NHGRI Q&A
- Trainees
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Video
ELSIcon2022 Plenary: Troubled Dreams: Genetics, Race, and the Search for Justice in Sickle Cell Disease
ELSIcon2022 • Plenary Session • June 2, 2022 Welcome and Introduction by Sandra Soo-Jin Lee, PhD. Plenary: "Gene Editing and Gene Therapy: The Case of Sickle Cell " presented by Keith Wailoo,…- Live
- Plenary Session
- Stigma and discrimination
- Gene Editing
- Sickle Cell
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Video
ELSIcon2022 Paper: COVID, Prenatal Genetic Testing, and the Digital Divide: Beyond Technology
ELSIcon2022 • Paper • June 2, 2022 Ruth M. Farrell, Christina Collart COVID and the events of the past year have brought to light the insidious issues of systemic racism, disparities, and…- Live
- Paper
- Access to genetic screening and therapies
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Video
ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa
ELSIcon2022 • Paper • June 2, 2022 Erin Burke, Michèle Ramsay, June Fabian Genetics researchers have earned the label “extractive biocolonialists” because they collect samples and fail to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research
ELSIcon2022 • Panel Session 12 • June 2, 2022 Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke The practice of community engaged research is grounded in ethical, practical,…- Live
- Panel
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Panel: Equity and Justice in Dementia Care: Perspectives on Ethical, Health, and Policy Implications of Tests and Treatments for Alzheimer's Disease and Related Dementias
ELSIcon2022 • Panel Session 13 • June 2, 2022 Hadley Stevens Smith, Emily Largent, Cheng Chen, Kathryn Phillips Advances in genetic and biomarker-based risk prediction, diagnosis, and treatment…- Live
- Panel
- Access to genetic screening and therapies
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Video
ELSIcon2022 Paper: Genetic data and the collective good: participants as leaders to reconcile individual and public interest
ELSIcon2022 • Paper • June 2, 2022 Ilaria Galasso, Susi Geiger This paper problematizes the notion of collective good in the contest of medical research and juxtaposes consequentialist and…- Live
- Paper
- Data and data stewardship
- equity and justice in genetics
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Video
ELSIcon2022: Paper Session 9
ELSIcon2022 • Paper Session 9 • June 2, 2022 Includes discussion material from Erin Burke, Ilaria Galasso, and Crystal Gonzalez.- Live
- Paper
- equity and justice in genetics
- Education and public reception of genetic science
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Video
ELSIcon2022: Paper Session 10
ELSIcon2022 • Paper Session 10 • June 2, 2022 Includes discussion material from Ruth Farrell, Catharine Wang, Kristina Suorsa-Johnson, Susan Markens, and Christina Collart.- Live
- Paper
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Provider Practices in Referring for Germline Genetic Testing for Men with Prostate Cancer at a Safety-Net Hospital
ELSIcon2022 • Paper • June 2, 2022 Christine Gunn, Emma Li, Gretchen Gignac, Magdalena Pankowska, Stephanie Loo, Kim Zayhowski, Catharine Wang National Comprehensive Cancer Network Guidelines…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening