The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
3591 - 3600 of 31513 Topics
-
Video
ELSIcon2022 Paper: Biological sample donation and informed consent for neurobiobanking: Evidence from a community survey in Ghana and Nigeria
ELSIcon2022 • Paper • June 3, 2022 Arti Singh, Michelle Nichols, Oyedunni Arulogun, Olorunyomi Olorunsogbon, Ezinne Uvere, Mayowa Ogunronbi, Joshua Akinyemi, Carolyn Jenkins, Kolawole Wahab,…- Live
- Paper
- Attitudes about sharing biological samples and health data
-
Video
ELSIcon2022 Paper: Democratizing Knowledge for Sickle Cell Disease Gene Therapy: A Deliberative Stakeholder Engagement Approach
ELSIcon2022 • Paper • June 3, 2022 Kiana Amini, Vence Bonham The advent of genetic therapy technologies implicates both tremendous therapeutic promise and potential risk. Sickle cell disease…- Live
- Paper
- Gene therapy and gene editing
-
Video
ELSIcon2022 Panel: Disability Justice and Precision Medicine Across the Lifespan: Towards a Future of Equity and Access
ELSIcon2022 • Panel • June 3, 2022 Kevin Mintz, David Wasserman, Leslie Francis, and Andrew Peterson This interdisciplinary panel will advance the dialogue between disability communities and those…- Live
- Panel
- Stigma and discrimination
- precision medicine
-
Video
ELSIcon2022 Flash: Engaging Adolescents in Genomic Decision Making
ELSIcon2022 • Flash • June 3, 2022 Amy Blumling, Melanie Myers, Cindy Prows, Kristin Childers-Buschie, Michelle McGowan Background: Professional organizations have historically recommended…- Live
- Flash
- Return of Results
- Genetic testing and screening
-
Video
ELSIcon2022 Flash: Ensuring equity through insurance coverage for whole exome sequencing and reanalysis
ELSIcon2022 • Flash • June 3, 2022 Caroline Horrow With the promise of whole exome sequencing (WES) and whole genome sequencing (WGS), some have argued for an ethical obligation to reinterpret…- Live
- Flash
- Access to genetic screening and therapies
-
Video
ELSIcon2022: Flash Session 2
ELSIcon2022 • Flash Session 2 • June 3, 2022 Includes discussion material from Amy Blumling, Caroline Horrow, Shawn T. Sorge, Eric Anderson, and EJ Dusic.- Live
- Flash
- Genetic testing and screening
-
Video
ELSIcon2022 Paper: Fresh Air for Genetic Data Sharing
ELSIcon2022 • Paper • June 3, 2022 Mary Majumder, Christi Guerrini, Amy McGuire, Jill Robinson, Matthew Blank, Robert Cook Deegan, Juli Bollinger, Janis Gear It is now widely acknowledged…- Live
- Paper
- Data and data stewardship
- equity and justice in genetics
-
Video
ELSIcon2022 Flash: Genetic testing for addiction: A qualitative examination of interest, motivations, and concerns among patients with gambling disorder and alcohol use disorder.
ELSIcon2022 • Flash • June 3, 2022 Shawn Sorge, Matthew Lebowitz Rationale: Addictive disorders are increasingly conceptualized as having a genetic basis. Personalized genetic information is…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
-
Video
ELSIcon2022 Paper: Neglected ELSI in Biobanking: Addressing Issues of Governance, Stewardship, and Equity
ELSIcon2022 • Paper • June 3, 2022 Roselle Ponsaran, Kyle B. Brothers, Aaron Goldenberg, Jean Cadigan The promotion of precision medicine has led to increased interest in larger collections…- Live
- Paper
- equity and justice in genetics
- Data and data stewardship
-
Video
ELSIcon2022: Paper Session 13
ELSIcon2022 • Paper Session 13 • June 3, 2022 Includes discussion material from Kayte Spector-Bagdady, Arti Singh, Roselle Ponsaran, and Mary Majumder.- Live
- Paper
- equity and justice in genetics
- Education and public reception of genetic science
- Biobanking and genomic databases