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Video
ELSIcon2022: Paper Session 14
ELSIcon2022 • Paper Session 14 • June 3, 2022 Includes discussion material from Kiana Amini, Vardit Ravitsky, Gail Henderson, John Conley, and Jennifer James.- Live
- Paper
- Genetic testing and screening
- Gene therapy and gene editing
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Video
ELSIcon2022 Flash: Patients’ expectations of benefits from large-panel genomic tumor testing in rural community oncology practices
ELSIcon2022 • Flash • June 3, 2022 Eric Anderson, Paul Han Large-panel genomic tumor testing (GTT) is a new technology that promises to make cancer treatment more precise. However, GTT also…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Public Engagement in Governance of Human Genome Editing in the Post-He Jiankui Era
ELSIcon2022 • Paper • June 3, 2022 John Conley, Eric Juengst, Rebecca Walker, Jean Cadigan, Gail Henderson When scientists meeting at Asilomar in 1975 wrote guidelines for recombinant DNA…- Live
- Paper
- Gene therapy and gene editing
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Video
ELSIcon2022 Paper: Returning Polygenic Risk Scores to Participants in a Pragmatic Clinical Trial of Breast Cancer Screening: Ethical Dilemmas and Participant (mis)Understanding
ELSIcon2022 • Paper • June 3, 2022 Jennifer James, Leslie Riddle, Mika Caruncho, Barbara Koenig, Galen Joseph Population-based genomic screening is at the forefront of a new approach to…- Live
- Paper
- Screening for polygenic conditions and risk scores
- Genetic testing and screening
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Video
ELSIcon2022 Flash: Socioeconomic Status and Interest in Pursuing Genetic Testing for Hereditary Cancer in a US Based Population
ELSIcon2022 • Flash • June 3, 2022 Presented by: EJ Dusic Deborah J. Bowen, Robin Bennett, Tesia Theoryn, Kevin C. Cain, Elizabeth Swisher, Jeannine Brant, Brian Shirts, Catharine Wang…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Panel: The Ethics of Influence and Choice Architecture in Genomics: Where Have We Been and Where Are We Going?
ELSIcon2022 • Panel • June 3, 2022 Benjamin Berkman, Susanna McGrew, Leila Jamal In Western bioethics, patient choice and autonomy have historically carried the most weight in conversations…- Live
- Panel
- Uptake of genetic testing
- Genetic Counseling
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Video
ELSIcon2022 Paper: A genetic counseling tool to reduce genetic essentialism and stigma/discrimination related to a hypothetical genetic risk for psychosis by educating high risk individuals about genetic malleability
ELSIcon2022 • Paper • June 3, 2022 Presented by: Drew Blasco Haley Park, Eleanor Zinn, Tanya Mehdizadeh, Lawrence Yang Psychosis is likely caused by both genetic and environmental factors.…- Live
- Paper
- tools
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Consumer Willingness to Share Personal Digital Information for Health-Related Uses
ELSIcon2022 • Paper • June 3, 2022 Presented by: David Grande Nandita Mitra, Raghu Iyengar, Raina Merchant, David Asch, Meghana Sharma, Carolyn Cannuscio Background: Consumers routinely…- Live
- Paper
- Attitudes about sharing biological samples and health data
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Video
ELSIcon2022 Paper: Consumers’ Perspectives Following Direct-to-Consumer Genetic Testing for Cancer Risk
ELSIcon2022 • Paper • June 3, 2022 Madison Kilbride, Brigitte Cronier, Lisa Kessler, Angela Bradbury Once limited to the clinical setting, genetic testing for cancer susceptibility is now widely…- Live
- Paper
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Dorothy, We’re Not in dbGaP Anymore: Emerging Cloud-Based Biomedical Data and Analysis Platforms and their Implications for Data Stewardship
ELSIcon2022 • Paper • June 3, 2022 Presented by: Sarah Nelson Jacklyn Dahlquist, Stephanie M. Fullerton Individual-level genomic, environmental, and linked health outcome data are being…- Live
- Paper
- Data and data stewardship
- precision medicine