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Research Tool
General Population and Patient Survey, Attitudes about the Ethics of Research on Medical Practices (RoMP)
This self-administered, web-based survey using an experimental between-group design to compare the effects of four informational aids on respondents’ understanding of core aspects of research on… -
Research Tool
Genome Empowerment Scale (GEmS)
The GEmS can be used to assess the genomic healthcare empowerment of parents (e.g., the meaning of a diagnosis for their child, emotional management of the process, their confidence in utilizing the… -
Research Tool
Optional Results Choice Aid (ORCA)
The Optional Results Choice Aid (ORCA) is a decision aid to support informed, values based decision-making for adult patients and research participants about the reciept of medically actionable,… -
Research Tool
Assessment of Strategic Integration of Genomics across Nursing (ASIGN) Maturity Matrix
The Assessment of Strategic Integration of Genomics across Nursing (ASIGN) maturity matrix (MM) is a self-assessment tool that enables users to asesses the progress of their country, city, or… -
Scholar
Andrea R. Waksmunski
- Genomic Information
- Genome-wide Association Studies
- Bioethics
- Science communication
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In the Media
Controversy flares over informing research subjects about ‘incidental’ genetic findings
Science News |Meredith Wadman- incidental findings/return of results
- All of Us Research Program
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Publication
The worldwide challenge to genetic engineering
Zed BooksDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Handbook of genome research: Genomics, proteomics, metabolomics, bioinformatics
Wiley-VCHDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…