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Video
ELSIcon2024: Rethinking the Rule Against Testing Children for Adult-Onset Conditions: A New Zealand Case Study
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Josephine Johnston, LLB, MBHL (she/her/hers) – University of Otago and The Hastings Center In New Zealand, like many countries…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Consent
- equity and justice in genetics
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Video
ELSIcon2024: From liminality to liberation: FACTS as a case study for addressing VUSs and prioritizing equity in genomic medicine
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University Scholars have long recognized challenges…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- precision medicine
- Use of race, ethnicity, and ancestry categories
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Video
ELSIcon2024: Attitudes, Values, Preferences, Oh My! What Stated Preference Methods Can Bring to ELSI Research
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Taylor Montgomery, MPH (she/her/hers) – Harvard University Quantitative researchers studying the Ethical, Legal, and Social…- ELSIcon2024
- 6th ELSI Congress
- Methodology and study design
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Video
ELSIcon2024: Whose Science? Whose Knowledge? Equitable Partnerships and Diverse Teams for Just Genomic Research
ELSIcon2024 • Panel • June 10, 2024 Authors: Corresponding Author: Shawneequa Callier, MA JD – The George Washington University Panelist: Lori B. Chibnik – Harvard University…- ELSIcon2024
- 6th ELSI Congress
- Biobanking and genomic databases
- Community Engagement
- equity and justice in genetics
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Video
ELSIcon2024: Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era
ELSIcon2024 • Panel • June 10, 2024 Authors: Corresponding Author: Natalie Lira Panelist: Jim Tabery, PhD – University of Utah Panelist: Marie Kaniecki, MPH (she/her/hers) –…- ELSIcon2024
- 6th ELSI Congress
- disability
- equity and justice in genetics
- reproductive genetics
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Video
ELSIcon2024: Beneficial engagement with Indigenous Peoples: A survey of Tribal research governance in the United States
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Ibrahim Garba, SJD (he/him/his) – University of Arizona Scientific studies with Indigenous Peoples have sometimes been termed…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- Indigenous communities collaboration
- Law, regulation, and governance
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Video
ELSIcon2024: Genomics Through the Eyes of Others
ELSIcon2024 • Panel • June 10, 2024 Authors: Corresponding Author: Ellen Wright Clayton, JD, MD (she/her/hers) – Vanderbilt University Panelist: Zhijun Yin, PhD – Vanderbilt…- ELSIcon2024
- 6th ELSI Congress
- Humanities and the Arts
- identity
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Video
ELSICon2024: Closing Plenary Panel
ELSIcon2024 • Plenary • June 12, 2024 Authors: Plenary Panelist: Maui Hudson - University of Waikato, Te Pua Wananga ki te Ao (New Zealand) Plenary Panelist: Vardit Ravitsky - The…- ELSIcon2024
- 6th ELSI Congress
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Video
ELSIcon2024 Plenary: Scientific, Regulatory, and Ethical Implications of Interventional Genetics and Individualized Medicines
ELSIcon2024 • Plenary • June 12, 2024 Authors: Timothy Yu, MD, PhD - Harvard University Advances in neurogenetics reveal an increasingly visible category of unmet need: precisely…- ELSIcon2024
- 6th ELSI Congress
- precision medicine
- Clinical genetic testing
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Video
ELSIcon2024 Plenary: What Can AI-ethics Learn from Gen-ethics: ELSI Lessons for the Coming Wave
ELSIcon2024 • Plenary • June 11, 2024 Authors: Vardit Ravitsky - The Hastings Center This talk will explore possible lessons from decades of ELSI research in genomics, for the more…- ELSIcon2024
- 6th ELSI Congress
- AI and machine learning