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Research Tool
Hierarchical Mapping Technique
The Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric… -
News
ELSI Research Methods Spotlight: Social Network Analysis
Laura M. Koehly, Ph.D., Chief & Senior Investigator at the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI), develops and applies social… -
Research Tool
Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales
The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the… -
Video
TraineeHub | Navigating Authorship: Who's on First?
"Navigating Authorship: Who's on First?" took place on February 16, 2024. Publishing in a top-notch scientific journal is a great reason for celebration. But getting there takes time, effort, and…- TraineeHub Resources
- Trainees
- Authorship
- academic publishing
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Video
Twisted Helix: Can Public-Private Partnership Genomic Projects Be Fair and Equitable?
Biotechnological innovation almost always entails all three strands of the triple helix: academia, government, and industry. This is increasingly true for large scale genomics and biomedical research…- Government
- Industry
- Private Enterprises
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News
ELSI in Review • March 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our March 2024 set explores liability in applications of… -
Grant Abstract
A Multi-stakeholder Approach to the ELSI of Social and Behavioral Genomics: Investigating the Field's Downstream Implications to Mitigate Harms, Promote Benefits, and Locate Social Responsibility
PROJECT NARRATIVE Using an innovative multi-stakeholder approach, this study will contribute essential and timely data, new methods, and ethical analyses to first investigate stakeholders’ (i.e.,…- Accountability
- social marketing
- Social Policies
- Advisory Committees
- educational models
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Grant Abstract
Trans/Forming Genomics: Guidance for Research Involving Transgender and Gender Diverse People
PROJECT NARRATIVE The recent explosion in biobanking, more routine collection of data on gender identity, and rapid expansion of research in transgender and gender diverse (TGD) populations has…- gender affirmation
- gender diversity
- gender expression
- polygenic risk score
- precision medicine
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Grant Abstract
GENETIC ATTRIBUTIONS AND RACIALIZED PERCEPTIONS OF OBESITY
The proposed research will examine primary care physicians’ attitudes and beliefs about genetic causes of obesity in Black and White patients, as well as perceptions among Black and White adults with…- Genetic Predisposition to Disease
- patient agents
- Patient Care
- Primary Care Physician
- Stigmatization
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Grant Abstract
Community Engagement Core
NARRATIVE / PUBLIC HEALTH RELEVANCE STATEMENT The Community Engagement Core (CEC) will provide the oversight needed to ensure the U54 Pacific Center for Genome Research (PCGR)’s consideration of…- medically underserved
- Arterial Disorder
- Atherosclerosis Risk in Communities
- Community Health Education
- Framingham Heart Study