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Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…- Address
- Behavioral
- Biomedical Research
- Categories
- Collection
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Grant Abstract
Actionable Ethics Oversight for Human-Animal Chimera Research
PROJECT NARRATIVE Advances in genome editing, embryology, and stem cell science are making it possible to imagine, and create, new kinds of human-animal chimeras that are both more biologically and…- Adopted
- animal breeding
- Animal Experimentation
- Animal Welfare
- Animals
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Grant Abstract
Prenatal Preparation: Actions and Results
PROJECT NARRATIVE Preparation is often cited as a reason for offering and for accepting prenatal genetic screening and diagnosis. However, this term has no clear definition, and thus it is impossible…- Advocacy
- Advocate
- Bioethics Consultants
- Child
- Clinical
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Grant Abstract
Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics
Project Narrative. Advances in psychiatric, neurologic and behavioral (PNB) genetics have brought the prospect of predictive and diagnostic genomic testing for many PNB conditions closer to clinical…- Academic Medical Centers
- Activities of Daily Living
- Address
- Affect
- autism spectrum disorder
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Grant Abstract
Programs for the Training and Advancement of the Next GENeration of Native Researchers in Genetics, Ethics and Society
Project Narrative The lack of American Indian and Alaska Native professionals in genomic sciences today highlights the tremendous need for effective training and research programs to prepare the next…- academic program
- Achievement
- Address
- Affect
- Alaska Native
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Grant Abstract
Behavioral Epigenetics in Children: Exploring the Social and Ethical Implications of Translation
This Pathway to Independence Award (K99/R00) will prepare the candidate to become an interdisciplinary ELSI researcher with a high-quality, independently funded research program exploring the…- Address
- Adopted
- Anxiety
- Area
- Attention
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Grant Abstract
ELSI Biennial Congress
PROJECT NARRATIVE The goal of the biennial ELSI Congress is to provide a dedicated, regularly scheduled meeting for researchers focused on the ethical, legal and social implications of genetic and…- Address
- Affect
- American
- base
- Bioethics
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Grant Abstract
Demographic Patterns of Eugenic Sterilization in Three U.S. States: Mixed Methods Investigation of Reproductive Control of the 'Unfit'
PROJECT NARRATIVE We will undertake epidemiological, historical and mixed-methods analysis of nearly 30,000 eugenic sterilization requests processed by three U.S. states: California, North Carolina,…- Age
- Archives
- Attitude
- base
- Belief
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Grant Abstract
Ensuring Patients' Informed Access to Noninvasive Prenatal Testing
PROJECT NARRATIVE The goal of this study is to study the effect of an evidence-based communication tool to support patients? decision-making about noninvasive prenatal genetic testing, by focusing on…- Aneuploidy
- Attitude
- bench to bedside
- Clinical
- clinical practice
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Video
Closing Remarks
ELSI Virtual Forum - Closing Remarks Sandra Soo-Jin Lee and Mildred Cho- Ethical AI
- Data Analyses