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Research Tool
Preferences for the Provision of Whole Genome Sequencing Services Among Young Adults
This survey was designed for use with the 10-minute video, Whole Genome Sequencing and You (available in this database). It can be used to collect demographic information and participant attitudes… -
Research Tool
Clinical Broad Data Sharing Consent Brochure, Clinical Genome Resource (ClinGen)
This is a printable version of the information from the Clinical Broad Data Sharing Consent Video (see this database). It describes key concepts outlined in the consent form, includes testimonials on… -
Research Tool
Qualitative Story Deck (QSD)
The “Qualitative Story Deck,” (QSD) is an interactive elicitation technique desgined to explore the willingness of African Americans (and others) to participate in health research involving… -
Research Tool
Physician Attitudes Toward Pharmacogenomics Pre- and Post-test Survey
A pre- and post-test questionnaire that measures changes in the knowledge and attitudes of physicians who have been administered pharmacogenetic testing is available in the supporting information… -
Research Tool
Genomcis Knowledge and Attitudes Toward Public Health Genomics, Survey for Public Health Professionals
This survey that measures genomics knowledge and attitudes toward the role of public health professionals in implementing public health genomics for public health professionals. The survey is… -
Research Tool
Influences on Precision Medicine Knowledge and Attitudes (Survey)
This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their… -
Research Tool
The Genetics of Alzheimer's (Video)
This short (3 minute) English language video provides information on Alzheimer's disease, including its genetic component. This video underscores Alzheimer's disease as a complex and multi-… -
Research Tool
Consent to Share Genetic and Health Information, Clinical Genome Resource (ClinGen)
This one-page consent form helps to faciliate consent and promote broad genomic data sharing in the clinical setting. The language use on the form is consistent with the NIH Genomic Data Sharing… -
Research Tool
Clinical Broad Data Sharing Consent Video, Clinical Genome Resource (ClinGen)
The 10 minute video explains key concepts outlined in the Consent to Share Genetic and Health Information form. It include testimonials on the importance of data sharing as well as information on the… -
Research Tool
CSER Phase 1: Personalized Oncology Through High-throughput Sequencing:
MI-ONCOSEQ Study ProtocolThe Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) (formerly known as “Personalized Medicine Based on Molecular Profiling of Patients with…