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This interview guide was developed to elicit African researchers experiences in international health research consortia; perceived benefits and risks of participation, and their recommendations for…

Clarke and colleagues developed the Genetic Knowledge Index using a combination of existing measures, including one from another CSER project for use in a study that assessed willingness to pay for…

Clarke and colleagues created this measure of support of science and technology (SST) for use in a study that assessed willingness to pay for expanded carrier screening. The measure is a set of 10…

Sayeed and colleagues developed this survey for use in the Project Baseline Health Study, which collected a variety of participant data, including genetic test results. The survey includes questions…

Ploug and Holm developed this choice based conjoint survey to record participant preferences about whole genome and exome sequencing results reporting in three scenarios with seven different…

This survey assesses views on aspects of the consent process, including willingness to share medical information and DNA for different research purposes, including controversial areas of research.

Hall and colleagues report the development and validation of 12-item survey and a short form (4-item) survey designed to measure trust in medical researchers. Final scale items are available in Table…

Mainous and colleagues report the development and validation of the 12-item Trust in Medical Resesearchers Scale. This scale is designed to be self-administered. Several scale items assess concerns…

McWhirter and colleagues report the development and validation of 6 scenarios based on actual genomic data sharing pratices in Australia. These scenarios could be used to inform the decision-making…

This focus group guide (see the methods, focus groups section of the linked article) was designed to assess interest in a research ethics consultation service. It includes a set of questions for…