Clinical Broad Data Sharing Consent Video, Clinical Genome Resource (ClinGen)
The 10 minute video explains key concepts outlined in the Consent to Share Genetic and Health Information form. It include testimonials on the importance of data sharing as well as information on the risks and benefits involved. The video was developed by the Clinical Genome Resource (ClinGen), a not-for-profit, National Institutes of Health (NIH)-funded resource dedicated to sharing genetic data, building knowledge, and improving patient care.
Riggs, E. R., Azzariti, D. R., Niehaus, A., Goehringer, S. R., Ramos, E. M., Rodriguez, L. L., Knoppers, B., Rehm, H. L., & Martin, C. L. (2019). Development of a consent resource for genomic data sharing in the clinical setting. Genetics in Medicine, 21(1), 81-88.