PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to support the creation of policies and approaches that will achieve goals for greater inclusion of historically marginalized populations in biomedical research.
PROJECT NARRATIVE This application builds on the R01 study the Ethics of Inclusion: Diversity in Precision Medicine Research and aims to investigate the preferences of African American and Hispanic/Latino communities, including the uninsured, who are being recruited into precision medicine research for different types of genetic test results and their expectations and needs for information and resources to allow for informed, validated follow-up of research results and clinical care.
Katherine D. Blizinsky, PhD - National Institutes of Health
ELSIconversations - April 16, 2021
Subhashini Chandrasekharan, PhD and Katherine D. Blizinsky, PhD - National Institutes of Health
ELSIconversations - April 16, 2021
Using an implementation research tool to guide the implementation of non-invasive prenatal screening
Tierry M. Laforce, MA, PhD Candidate - Université de Montréal
Creates a health data collaborative working group to examine and make recommendations regarding (1) precision medicine and personalized health; (2) economic growth initiatives for businesses working in certain scientific areas; (3) health data access, privacy and security initiatives; and (4) platforms for collecting health data in order to understand the interplay between genetic, behavioral and environmental factors in the incidence of disease or illness. 6/30/2017 Signed by the Governor. Effective immediately. Bill Status: Enacted
