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  • Grant Abstract

    Genomics, Biometrics and Identity

    Public Health Relevance Section Policies in the U.S. increasingly rely upon genomic information as a biometric to inform visa application processes, by verifying biological relationship claims or…
    • Advocate
    • Affect
    • Attention
    • authority
    • base

  • Grant Abstract

    The Stanford Training Program in ELSI Research

    PUBLIC HEALTH RELEVANCE The proposed research training program at Stanford University is to create independent scholars who can conduct rigorous research on ethical, legal and social implications…
    • Research
    • Training Programs

  • Grant Abstract

    Health care system-led familial risk notification: design and ethical assessment

    PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…
    • actionable mutation
    • Address
    • base
    • behavior test
    • BRCA1 gene

  • Grant Abstract

    Reporting Adult-Onset Genomic Results to Pediatric Biobank Participants and Parents

    Project Narrative The potential benefits and harms of returning genomic results to children and their parents are matters of enduring controversy?especially genomic results for adult-onset conditions…
    • Address
    • Adolescent
    • Adolescent Development
    • Adult
    • Affect

  • Grant Abstract

    FOSTERING INTEGRITY AND SOCIETAL IMPACT IN GENOMICS THROUGH MANAGEMENT AND LEADERSHIP PRACTICES

    PUBLIC HEALTH RELEVANCE: Researchers engaged in conducting genetic and genomic science are significant players in advancing biomedical science and health care. Through their work, they are a vital…
    • Academic achievement
    • Address
    • Advisory Committees
    • Affect
    • Behavior

  • Grant Abstract

    Enhancing Diversity among Future ELSI Researchers

    The proposed R25 Research Education Program is devoted to building a 15-month research mentorship program at the Johns Hopkins Berman Institute of Bioethics (BI) for students from diverse,…
    • Area
    • Baltimore
    • Bioethics
    • career
    • cohort

  • Grant Abstract

    Scalable tools to effectively translate genomic discoveries into the clinic

    PROJECT NARRATIVE/ RELEVANCE OF PROJECT TO RESEARCH AND PUBLIC HEALTH Widespread utilization of genomic sequencing in medicine creates an urgent need to educate providers and patients. Currently,…
    • Address
    • Area
    • Attitude
    • base
    • Caring

  • Grant Abstract

    The Ethics of Inclusion: Diversity in Precision Medicine Research

    PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…
    • Address
    • Behavioral
    • Biomedical Research
    • Categories
    • Collection

  • Grant Abstract

    Actionable Ethics Oversight for Human-Animal Chimera Research

    PROJECT NARRATIVE Advances in genome editing, embryology, and stem cell science are making it possible to imagine, and create, new kinds of human-animal chimeras that are both more biologically and…
    • Adopted
    • animal breeding
    • Animal Experimentation
    • Animal Welfare
    • Animals

  • Grant Abstract

    Prenatal Preparation: Actions and Results

    PROJECT NARRATIVE Preparation is often cited as a reason for offering and for accepting prenatal genetic screening and diagnosis. However, this term has no clear definition, and thus it is impossible…
    • Advocacy
    • Advocate
    • Bioethics Consultants
    • Child
    • Clinical