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ELSIcon2022 Paper: Embryoids: What are they, should we be concerned, should they be regulated, and if so, how?
ELSIcon2022 • Paper • June 3, 2022 Ana Iltis, Kirstin Matthews Researchers have made significant strides toward studying human embryogenesis by culturing human embryos longer and creating…- Live
- Paper
- Emerging technologies - public opinion and policy
- Gene therapy and gene editing
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Video
ELSIcon2022 Panel: Ethical, Clinical, Legal, and Economic Issues Surrounding Genetic Variant Reinterpretation
ELSIcon2022 • Panel • June 3, 2022 Paul Appelbaum, Wendy Chung, Gary Marchant, Jose Pagan The knowledge base for interpreting genetic variants changes as new cases are reported, population…- Live
- Panel
- return of results
- Genetic testing and screening
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ELSIcon2022 Paper: Facilitators and barriers to ethical machine learning in healthcare: A qualitative study on developer perspectives of potential harms
ELSIcon2022 • Paper • June 3, 2022 Ariadne Nichol, Meghan Halley, Carole Federico, Pamela Sankar, Mildred Cho Machine learning predictive analytics (MLPA) applications have attracted…- Live
- Paper
- Emerging technologies - public opinion and policy
- AI and machine learning
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ELSIcon2022 Panel: If we build it will they come? Navigating ELSI considerations for broad and responsible use of All of Us data by non-traditional researchers
ELSIcon2022 • Panel • June 3, 2022 Subhashini Chandrasekharan, Laura Beskow, Rosario Isasi, Stephen Sodeke The All of Us Research Program is in the process of collecting biospecimens and…- Live
- Panel
- Data and data stewardship
- precision medicine
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ELSIcon2022 Paper: Incorporating Patient and Relative Preferences in the Design of Traceback Cascade Testing Initiatives
ELSIcon2022 • Paper • June 3, 2022 Presented by: Katrina Romagnoli Alanna Kulchak Rahm, Cabell Jonas, Tracey Klinger, Leigh Sheridan, Ilene Ladd, Zachary Salvati, Anna DiNucci, Paula Blasi,…- Live
- Paper
- Disclosure of genetic risk information to relatives
- Genetic testing and screening
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ELSIcon2022 Paper: Is Non-invasive Prenatal Testing Really Invasive? Examining Black Women’s Perceptions of Non-Invasive Prenatal Testing for Sickle Cell Disease
ELSIcon2022 • Paper • June 3, 2022 Presented by: Shameka Poetry Thomas Non-invasive prenatal testing (NIPT) has become standard prenatal care in the United States and is currently being…- Live
- Paper
- Uptake of genetic testing
- reproductive genetics
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ELSIcon2022: Paper Session 15
ELSIcon2022 • Paper Session 15 • June 3, 2022 Includes discussion material from Drew Blasco, Madison Kilbride, Katrina Romagnoli, and Blake Vuocolo.- Live
- Paper
- Genetic testing and screening
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Video
ELSIcon2022: Paper Session 17
ELSIcon2022 • Paper Session 17 • June 3, 2022 Includes discussion material from Kirstin Matthews, PhD, and Shameka Poetry Thomas, PhD.- Live
- Paper
- reproductive genetics
- Gene therapy and gene editing
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Video
ELSIcon2022 Paper: Parent-reported barriers and facilitators to accessing care recommended from genomic sequencing in pediatric cancer patients
ELSIcon2022 • Paper • June 3, 2022 Presented by: Blake Vuocolo Mary Majumder, Jill Robinson, Amanda Gutierrez, Lauren Desrosiers, Sarah Scollon, D. Will Parsons, Sharon Plon, Amy McGuire…- Live
- Paper
- Access to genetic screening and therapies
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ELSIcon2022 Paper: Reproductive Concerns of Disabled Women: Whose Definitions of Disability are We Embracing?
ELSIcon2022 • Paper • June 3, 2022 Presented by: Dana Ernst • Co-Authors: Laren Clark, Sara Simonsen, Jacqueline Kent-Marvick, Elinor Ochs • Special thanks: James Tabery, Rebecca Anderson…- Live
- Paper
- Language and categorization
- reproductive genetics