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Video
ELSIcon2022: Paper Session 17
ELSIcon2022 • Paper Session 17 • June 3, 2022 Includes discussion material from Kirstin Matthews, PhD, and Shameka Poetry Thomas, PhD.- Live
- Paper
- reproductive genetics
- Gene therapy and gene editing
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Video
ELSIcon2022 Paper: Parent-reported barriers and facilitators to accessing care recommended from genomic sequencing in pediatric cancer patients
ELSIcon2022 • Paper • June 3, 2022 Presented by: Blake Vuocolo Mary Majumder, Jill Robinson, Amanda Gutierrez, Lauren Desrosiers, Sarah Scollon, D. Will Parsons, Sharon Plon, Amy McGuire…- Live
- Paper
- Access to genetic screening and therapies
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Video
ELSIcon2022 Paper: Reproductive Concerns of Disabled Women: Whose Definitions of Disability are We Embracing?
ELSIcon2022 • Paper • June 3, 2022 Presented by: Dana Ernst • Co-Authors: Laren Clark, Sara Simonsen, Jacqueline Kent-Marvick, Elinor Ochs • Special thanks: James Tabery, Rebecca Anderson…- Live
- Paper
- Language and categorization
- reproductive genetics
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Video
ELSIcon2022: Moderated Plenary Panel
ELSIcon2022 • Moderated Plenary Panel • June 3, 2022 This final panel discussion features keynote and plenary speakers Ruqaiijah Yearby, Teresa Blankmeyer-Burke, and Keith Wailoo, moderated by…- Live
- Plenary Session
- structural racism
- ableism
- audism
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News
ELSI in Review • November 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2022 set explores ethical considerations in… -
Scholar
Horvey M. Palacios
- ancient DNA
- Metagenomics
- archaeology
- sample collection
- Health and healthcare inequalities
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Publication
Reconceptualizing consent for direct-to-consumer health services
American Journal of Law & Medicine -
Publication
A mixed-methods protocol to develop and validate a stewardship maturity matrix for human genomic data in the cloud
Frontiers in Genetics -
Publication
"The Google of healthcare": Enabling the privatization of genetic bio/databanking
Annals of Epidemiology